Wednesday

May 25th, 2022 — 4:02pm

Tired as hell. Did laundry, changed the bedding. Lying here enjoying the warm fresh air blowing through my bedroom window.

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Tuesday

May 24th, 2022 — 10:06pm

Another school shooting. Our greedy, feckless politicians and corporations have the blood of murdered children on their hands. Again. i can’t bear it.

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Monday

May 23rd, 2022 — 9:10pm

Did I mention that my pulmonologist is letting me increase my dose of remodulin again? I’m up to 68 ng/kg/min. I was at 40 this time last year. I felt really good today and I’m hoping it’s not a coincidence.

When I got up this morning I felt like doing something, so I went to a little nursery a few blocks away and bought seedlings. Two kinds of cherry tomatoes, pole beans, sweet white onions, marigolds, and strawberries. I took them home and then realized that I forgot to stop and get some garden tools and bamboo stakes, so I zipped back out to Ace for those. Then I rested a bit, and then I planted everything! The onions and marigolds are to keep away pests (I read that somewhere…) Pics soon.

Then rested for a while and chatted with Dave, and then I suddenly got the desire to play my uke! Tuned up and ran through some of my collection of uke-friendly tunes. I keep a collection in my dropbox. Dave says I have a lovely singing voice *heart eyes*

Dinner: crusty baguette with cold butter curls (use your veggie peeler) and some green olives.

It’s 9pm now and I’m… not exhausted. What is this magical miracle? Perhaps tomorrow I can SEW!

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Sunday

May 22nd, 2022 — 11:06pm

I got enough sleep and felt excellent! It was a beautiful Spring day, warm and sunny. I sewed a little summer suit for Freyja:

And I lay out in the sun for a lomg time in the afternoon when the UV index was only 3. The trampoline makes a comfy sun lounger.

My hair turned out great!

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Saturday

May 21st, 2022 — 6:44pm

Last night I had the most horrible insomnia. I was SO TIRED and turned my light off at 10pm, hoping for ten hours of sleep, but lay there till at least 1am, feeling as if I’d drunk a bucket of coffee. And then I woke up at 7am. Ugh. I was blaming my newly-increased dose of Remodulin (insomnia is a rare side effect, but women over 50 who’ve been on it for more than 2 years are the ones who get it) but then I noticed that last night’s dose of mirtazapine was on the floor by my bed. It must have flown out of my hand when I took my bedtime handful of pills. So that explains it. *eyeroll*

Today I took a shower and re-dyed my teal-blue forelock. And I finished My Brother Rabbit. And… that’s it. Oh, I also sat out in the sun for a while. It was a lovely day, 70° and sunny. Perfect.

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Friday

May 20th, 2022 — 10:33pm

So flippin’ tired. Did nothing today except finish my Spider Socks. They’re a bit big on my skinny skinny feet so I gave them to Mom :)

Pattern is “The Gardener” by Leslie Comstock.

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Thursday

May 19th, 2022 — 10:57pm

I drove Mom over to Henry’s house to spend a couple days with them. Beautiful day, lots of rain. Should be clear and warm over the weekend so I hope to plant some more seedlings. I think there’s a nursery or two right in my neighborhood. If I feel ok tomorrow I might go have a peep and see what they’ve got.

I’m absolutely itching to do some sewing but so tired today after waking up too early and doing that drive (and having Company for two days), so I spent a lot of time re-re-replaying My Brother Rabbit on the switch. It’s a sweetly surreal little indy puzzle game that Em and I like to play over and over. Hmm, need to write to Em tomorrow.

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Wednesday

May 18th, 2022 — 9:25pm

Mom brought some Stravinsky piano duets, so after the piano tuner was finished the morning we played through them several times. Super fun, and Dave was really impressed by my sight-reading skillz. I haven’t really played piano for him till now because I really don’t enjoy playing solo; give me an ensemble and I’m happy.

Btw the tuner was Britney, whose piano tuning and repair business is called Little Orchestra. She was fantastic! If you’re in the Portland Metro area, I recommend her highly.

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Tuesday

May 17th, 2022 — 10:20pm

Lovely Spring day! Mid-60s and mostly sunny. Mom came to visit and I picked her up at the airport and gave her the grand tour of our sweet house. So great to have a proper guest room for her. We watched a lot of Escape to the Country with her before bed. Fun!

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Monday

May 16th, 2022 — 11:35am

I finished my March Dress!

The fabric is a beautifully soft and drapey cotton double gauze from Minerva.com. It was fun deciding whether to use the big checks or the little ones for different parts of the dress! I think I made a good choice. I lengthened the pattern by two inches because I’m tall and it was drafted for a 5’6” figure. Also I skipped the interfacing for a softer look.

I made a Schoolgirl Error when attaching skirt to bodice and got the pockets flipped to the back, but a few minutes with a seam ripper and my pockets are now correctly oriented. :D

The pattern is from Helen’s Closet. You absolutely cannot go wrong with Helen’s patterns; they’re well-written, well-drafted, and so versatile! I will be living in this dress all summer. I can’t wait to make another one.

Oh, by the way — seven trips through the dryer on “air dry” and the Great Lint Disaster of 2022 is resolved! My clothes are completely lint-free. *whew*

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Sunday

May 15th, 2022 — 9:33pm

I had the world‘s worst laundry disaster today. It was so bad, just BEYOND bad, that I was standing in the bathroom/laundry room howling with laughter! Turns out I somehow got one of those padded brown envelopes mixed up with my washing, one of those with a layer of gray fluff between two layers of thick brown paper.

When I opened the machine to take out my laundry, all these odd brown flakes fell out. I looked deeper and OH MY. I’m actually laughing again just thinking about it! Imagine sending a kleenex through. Now multiply that level of lint by about a hundred.

I usually hang everything to dry (saves energy and keeps your clothes nice for much longer) but I had to do something about the lint so I ran the whole load through the dryer on “air dry”. Cleaned the filter and ran it again. And again. And again… it’s on the sixth time through and I’m still scraping a big wad of fluff out of the filter every time.

Here’s a pic of my floor before I swept it. Note the great wads of wet brown paper in the basket.

Don’t be like Kayray! Check your laundry every time. Lololol!

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Saturday

May 14th, 2022 — 2:22pm

A few days ago I asked Teacher Nick, who runs Lulu’s beloved Nature School (at which six preschoolers run around having adventures in a forest all morning) if he needed any supplies. He said — play dough! So I set about trying to find a recipe, because I’d rather make it myself than buy the little plastic cans. Ugh.

Found a likely recipe, sent Dave to the store to salt and cream of tartar, and set to work this morning. Great recipe! From
https://www.thebestideasforkids.com/playdough-recipe/

  • 1 c flour
  • 1/2 c salt
  • 2 tsp cream of tartar
  • 1 c water
  • 1 tbsp vegetable oil
  • Food coloring

Mix dries in a bowl. Mix wets, including food coloring, in a pan. Stir dries into wets, cook over medium heat, stirring, till it thickens and stops being sticky. Turn out onto a big plate, let cool a few minutes, and knead for a few minutes. Done!

I made one batch each of five colors:

It was a lot of stirring so then I was done for the day :D

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Friday

May 13th, 2022 — 8:39pm

Drove over to visit Henry and all! Lulu has Nature Preschool on Tue-Wed-Thu mornings but is at a Loose End on Monday and Friday. It’s so nice to spend time with them in their new home! I took a backpack full of picture books to read to her, and we watched some YouTube amd hung out. Wonderful!

Came home around noon totally exhausted and did pleasant nothing for the rest of the day. Got into a conversation with a twitter friend about one of my favorite movies, Holiday (1938, Grant and Hepburn) and realized I only had a crappy VHS rip, so I dl‘d a nice blu-ray rip and began another viewing.

In the evening we got caught caught up on Taskmaster (13 is a great season!) and Survivor (42, also great!). The cast is so likable! Really good players, too. There are 6 left and we will be happy no matter who wins.

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Thursday

May 12th, 2022 — 10:44pm

I finished the entire top half of my dress: bodice, sleeves, sleeve bands, neck band. All that’s left is pockets, skirt, join everything together, and hem. Tomorrow will be a bit busy but I’m sure I’ll be wearing my new dress next week.

We had the best time watching the Eurovision semi-finals! Absolutely bonkers. Highlight was the band whose singer wore a black lace bodysuit over a black Speedo and ended up ridings a bedazzled red velvet mechanical bull while the guitarist shot flames out of the neck of his guitar. As one does. I think it was North Macedonia. Anyway no act came anywhere near the quirky clever singable charm of Iceland’s entry into the (cancelled) 2020 show.

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Wednesday

May 11th, 2022 — 9:16pm

Woke up too early (Dave usually gets up before his alarm but it went off this morning and I nearly leapt out of bed. It‘s LOUD) and felt crappy but lazed in bed for a few hours and then felt good enough to do a little sewing! I finished the bodice of the March Dress. Sleeves tomorrow.

98.2 lbs this morning. Argh. Nibbled cannabis gummies until I had an appetite and managed to eat an entire serving of lasagna for dinner.

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Tuesday

May 10th, 2022 — 8:18pm

Another beautiful day in Portland Paradise. I drove out to Henry’s new house to give him some cash for gas — he’s driving so much because of the move and he’s feeling the pinch. A little gas money makes everything easier. It’s so amazing to visit them in their own house! There’s always parking in their driveway. No stairs — up one step and you’re at the door. Henry was working (from home) so I drove Jayla to the store for a broom and a shower curtain. Sweet sweet couple. *heart eyes*

I swung by Trader Joe’s on the way back to return two expensive boxes of horrible, flavorless blueberries. Trader Joe’s is so nice about returns — no questions asked, no receipt needed. Got some milk, juice, onions, raisins, and peanuts. I’ve been keeping GORP (good old raisins and peanuts) on my nightstand to cram some calories and nutrients in before I go to sleep.

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Monday

May 9th, 2022 — 8:34pm

This morning I cut out all the pieces for a new summer dress, and then I was tired so I didn’t do much else. But I felt cheerful so that’s ok. Maybe I can start sewing tomorrow.

My endocrinologist got back to me about my cortisol results: not low, so not Addison’s. A little high, but that’s to be expected for someone who’s not getting enough calories, so not Cushing’s. So that’s good! Still waiting for the results of an special thyroid test, so maybe that will provide answers. 100 lbs today.

We finally got caught up on the shows we missed while Dave was out of town and my laptop was in the shop. Omg this series of Taskmaster is So Good! The shoe task. Little Alex Horne’s Stag Minute. Lololol!

Survivor is great too, especially after re-watching season 30 (blue collar, white collar, no collar), in which nearly every contestant was loathesome and, after Jenn and Joe went home, I didn’t want any of them to win. Season 42 is full of intelligent, likeable people and I’ll be pleased no matter who wins.

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Sunday

May 8th, 2022 — 8:56pm

I felt better today than I have in weeks (months maybe?) so I got a lot of housework done finally! This place was becoming a tip. I sent the Roomba through the whole house (not insignificant because I need to make sure the floors are clear of things and cables), I cleaned the sink and toilet, I did the dishes, did a load of laundry for Dave (he can’t see the black-on-black washing machine buttons), and made him sort through three or four boxes of his bathroom clutter while he was watching TV. He filled a garbage bag!

Then I rested in the afternoon, and then I made dinner! I definitely haven’t cooked since my most recent hospital visit. I wasn’t hungry but it was pleasant to eat. I made mac n cheese with peas and tuna. I added cream cheese, sour cream, and a pinch of cayenne to the cheese sauce. Quite tasty.

I think my new higher dose of remodulin has kicked in. Thank goodness.

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Saturday

May 7th, 2022 — 10:56pm

Henry and Jayla got the keys to their nee house yesterday! Yes, a Millennial couple bought a house! (With downpayment help and advice from someone wonderful) It’s a sweet little 1959 tract house on a quiet street in a nice, diverse, family neighborhood, walking distance from elementary, middle, and high schools and plenty of parks and other amenities.

They have a back yard for the dog and the girls to play in. A double garage to keep things in. An apple tree. Rose bushes. A gas stive and a window over the kitchen sink. A driveway to park in and no stairs! (They’re been living in an absolutely hellish apartment building for the last couple of years)

Today we went over to hang out and let the Internet Man in while Henry drove around getting things done. Lulu took Dave by the hand to give him a tour and my heart melted.

You have no idea what a relief this is to me to know that they’re no longer at the meecy of rotten landlords. They have their own house! They can hang pictures and paint the walls any color they like! Lulu can run around without being shushed for fear of pissing off the downstairs neighbors.

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Friday

May 6th, 2022 — 6:37pm

Got up at crack of dawn to get early morning labs done. So tired all day.

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